How you can get involved in changing young people’s livesReading Football Club have played a tiny part in making one young but hugely inspirational Duchenne muscular dystrophy sufferer’s life a little bit brighter! You can get involved and make a difference too…
About 2,400 people in the UK have Duchenne muscular dystrophy. It is caused by genetic mutations on the ‘X’ chromosome. These mutations prevent the body from producing a vital muscle protein, dystrophin, which is needed to build and repair muscle.
Most people with Duchenne muscular dystrophy are diagnosed by the age of five and use a wheelchair by the time they are 12. This is the case with Ryan. Many face severe health problems by their late teens as the muscles of their heart and lungs weaken.
Although the condition is severely disabling, many people living with Duchenne muscular dystrophy lead full and active lives.
With medical advances, life expectancy for those with the condition is improving and the right specialist healthcare and equipment can also make a significant difference to both quality and length of life.
How to get involved
Muscular Dystrophy UK is the charity for the 70,000 people living with muscle-wasting conditions in the UK. They help to bring together people affected by more than 60 rare and very rare progressive muscle-weakening and wasting conditions.
Since 1959, the charity has been supporting families living with muscle-wasting conditions and they continue to provide vital information, advice, resources and support for people with these conditions, their families and the professionals who work with them.
We know we can beat muscle-wasting conditions more quickly by working together and there are lots of different ways you can get involved in the work of Muscular Dystrophy UK.
Whether you’d like to campaign, fundraise or volunteer with the charity, visit www.musculardystrophyuk.org now.
Background to The Avenue School
The Avenue School-Special Needs Academy is a school for boys and girls from the age of 2 – 19 with complex special educational needs.
Now situated on Conwy Close in Tilehurst, the original school was established in 1901 opening a class for those with special needs at the Oxford Road School on 2nd September more than a century ago. It then grew, becoming one of the oldest purpose-built special schools in Berkshire when new annexes were built in 1909 – and it remains the only school of its type within the borough.
On its first morning in 1901, ten children were admitted to that single class. By the beginning of First World War the number had risen to 180 pupils visiting what had become a mainstream school, then named Whitley Special School.
Renamed The Avenue in 1954, the school moved to new premises in September 2008, and it currently houses approximately 120 pupils and roughly the same number of staff, made up of teachers, classroom assistants, nurses, physiotherapists, specialists in hearing impairment and visual impairment, speech and language therapists, occupational therapists, cooks, lunchtime controllers, caretakers and administrative staff.
The school’s many specialist teams work together to provide an innovative and creative curriculum delivered through some highly specialised techniques and The Avenue School was the first in Reading to gain the Inclusion Quality Mark as its work in this area has been recognised as outstanding.
Hard work and enjoyment go hand in hand at The Avenue. Pupils are given many opportunities to show their skills and celebrate together and the school has a wonderful atmosphere. As a club and a Community Trust, we are extremely proud to be involved with The Avenue School.